In November 2024, Data Saves Lives celebrated its five-year anniversary event in Brussels. The two-day event provided an opportunity to reflect on the DSL journey of empowering health communities through data literacy. It brought together key stakeholders to discuss the progress made and explore the future of health data sharing in healthcare.

The EHDS Regulation is coming into force in late March 2025. It has the potential to empower patients in the European Union to access their health data, as well as harness the research potential of health data. 

Access to healthcare data has been a major concern for patients and healthcare users’ associations for many years in France. As far back as 2008, when France Assos Santé set up a national task force dedicated to digital healthcare, the exploitation of the French National Healthcare Data System was already on our agenda. This fall, we have reached a new milestone with the launch of a new service in collaboration with the Health Data Hub, a significant step in our commitment to enable access to healthcare data and its uses.

The Data Saves Lives (DSL) 5th Anniversary event, held on 26-27 November 2024, in Brussels, Belgium, brought together key stakeholders from across Europe's health landscape to explore the progress, challenges, and future of responsible health data sharing.

Healthcare systems are becoming increasingly dependent on information and communication technologies to deliver quality care to European Union (EU) citizens. As the volume of collected healthcare data expands, the need for transitioning from traditional paper-based to digitalised health records is clear.